Sorry for no post in a couple days. We have been pretty busy taking care of Haven and speaking with the doctors. On Thursday, we were able to arrange a Care Conference for Haven. We met with doctors from all aspects of Haven’s care and asked questions that allowed them to discuss and colaborate. As a result of the conference, the doctors were able to create a plan for the next steps in her recovery.

The Plan: Haven started a medicine this week that has been used in some cases to dry up chest fluid. The medicine will take another week before we may see results. If her chest fluid begins to dry up they will start feeding her again and see if the fluid comes back. If the fluid does not accumulate again, she will have a feeding tube placed into her stomach. The doctors decided that she is not in good enough shape to go in for an operation. If her chest stops draining, she will be able to retain nutrients better and will be better prepared for the feeding tube operation. If Haven’s body decides to follow this plan, that will be ideal. However, if the medication does not dry up the chest drainage, the doctors will need to go inside Haven’s chest to attempt to solve the problem.

Haven is trying to get over the infection that she has been fighting the last week. She is much more comfortable today even without pain medication. We have been helping her practice using her arms which are usually tied down with IV’s and monitors. She keeps wondering whose little hand keeps hitting her in the face 🙂 She’ll get the hang of it!