To those affected by a heart defect:

A Weekend of Waiting

February 10, 2007 at 4:51 pm by Mom & Dad

The past couple of days have been fairly steady for Haven.  We’re thankful that over the course of this week, she has tolerated feedings through her NJ-tube.  In fact, the amount of milk she is receiving has been increased twice.  (She started at one-third of a mililiter every hour, then up to one mililiter, now she is at two mililiters every hour–two mililiters is less than half a teaspoon!).  We are expecting this process to be a long one, so patience will be important.  Unfortunately, the doctors were unable to finalize on a decision regarding exactly needs to be done to get access directly to Haven’s digestive system through some other means than her nostrils.  We are trying to schedule a meeting with all the doctors on Haven’s team sometime early next week.  Since she has been there nearly nine weeks and her case is so complicated with so many people involved, we need to all regroup and communicate a plan for her treatment and recovery from this point out.  Hopefully, the hardest thing to deal with this weekend will be trying to explain to Haven why there won’t be a Colts game on Sunday.   

Posted in Recovery #1 | No Comments »

Leave a Comment

Please note: Comment moderation is enabled and may delay your comment. There is no need to resubmit your comment.

This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

Site Under Construction

Please come back soon for the new version of Haven's Heart.net!!!