To those affected by a heart defect:

Moving Along

February 8, 2007 at 1:15 pm by Mom & Dad

The past few days have gone well for our sweet little Haven.  The doctors have found a way to manage her feeding problems temporarily as her system has time to recover.  They plan to insert two tubes into her stomach through her belly- a J tube and a G tube.  One tube will suction out the bile to keep her from vomiting.  The other tube will go down into her small intestine to feed her.  We expect the surgery to take place within the next few days.  Once those tubes are in place, they will start working towards getting her off the ventilator.  Although having tubes in her stomach is not ideal, this will allow her to get the nourishment she needs as her digestive system recovers from all it s been through.  The doctors are still trying to figure out how to get her chest to stop draining… she’s definitely helping them gain “experience”.  She has continued to experience heart arrhythmias but they do not appear to be dangerous.  The doctors explained to us that all people have arrhythmias from time to time.  They expect hers will go away as her heart recovers and matures.  Haven has enjoyed new blankets, books, and toys that she has received as gifts.  She wasn’t too fond of the sunglasses, but we’ll give it a little time!

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. The myers Gang Says:

    Thanks for the latest, our thoughts and prayers will be with you baby girl, you too Mom and Dad. It was so awesome to to talk to you Sun. evening Jer. We are anxious for the moment we can see you three face to face, but as I said, we all are waiting on little Havens time.Her video was so precious too. Love you all so much.:)

  2. Randy and Lori Says:

    So happy to read that Haven is doing well. Alison, it was so good to see you and experience your positive attitude first hand. You are an inspiration.

    Jeremey and Haven, thank you for sharing Alison with us.

    As always, you are in our thoughts and prayers.

  3. Laurie Says:

    As my Dad (Great Great Uncle Virgil) says, God gives the doctors wisdom and knowledge so they are in our prayers. And of course Haven who is such a fighter. Glad to hear that the
    new feeding plan may be just
    what she needs right now and that her heart arrhythmias are expected to go away with time.
    God bless you Mom & Dad, give those chubby cheeks of your daughters’ a kiss and have a good day tomorrow!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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