To those affected by a heart defect:

Holding Feeds For Now

February 6, 2007 at 6:10 pm by Mom & Dad

Haven has had a very good day today so far. We have been putting together a new plan for her feedings. We implemented the plan at noon yesterday, and so far, it seems to be working. However, in the past when feeds have been tried, it usually takes a couple of days before Haven begins to show signs of intolerance. So, we’ll need to wait it out another day or two before we can say the plan is actually working. She still only gets very little amounts of food right now, and the doctors say it could take months before she is getting food at a “normal” rate. Hopefully, we can get things stabilized so that Haven doesn’t have to be hospitalized that whole time.

Over the weekend, Haven developed a heart arhythmia (arhythmia = irregular heart beat) that appears to be unprompted and comes and goes as it pleases. This also causes her base heart rate to be higher. Yesterday she started receiving a medication that should help keep that under control. So far today, she has not had one of those episodes. These next few days may seem a little uneventful, but if she can tolerate this new feeding plan, it seems that we may be able to move forward with the recovery process. We’ll keep you posted as we go along!

Posted in Recovery #1 | 1 Comment »

One Response

  1. Sierra Says:

    It’s so good to hear that Haven has had a good couple of days. It sounds as if she is on a steady pace forward. She is such a blessing and I look forward to reading how she is doing. My prayers are with you three and may today be another good day!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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