To those affected by a heart defect:

Almost off the ventilator

February 1, 2007 at 9:34 pm by Mom & Dad

Despite being weaned off some of her sedation and pain medications, Haven slept for most of the day today. She appeared to comfortable and happy bundled up in her blankets (they turned off the warmer today!). They have also come down on her ventilator settings quite a bit. Turns out one of her chest tubes was clogged up. Now that it is cleared up, the drainage continues. Doctors are still trying to figure out where it is coming from. They have several opinions and are doing tests and labs to discover the exact source. They would like to take Haven off the ventilator soon. Assuming her chest stops draining (or as long as the tubes are still there and working), she should have no problem breathing on her own. The biggest concern with her being off the ventilator actually has to do with her feeding intolerance. We’re afraid that what she throws up might get inhaled into her lungs. That obviously would be problematic. Of course, her digestive troubles are still an issue, and they are looking into it. Unfortunately, it appears that the solution may end up just being to wait it out. We’ll see.

Posted in Recovery #1 | 1 Comment »

One Response

  1. Katie, Carl and Evelyn Says:

    Alison and Jeremey, we just wanted to tell you that we think Haven is beautiful. Love, the Rudys

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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