To those affected by a heart defect:

Plan B

January 31, 2007 at 6:47 pm by Mom & Dad

Last night, they decided to try a new plan for feeding little Haven.  They started by giving her a very tiny amount of a special formula (that is broken down and contains less fat) over a three-hour period.  They did this for six hours and things seemed to be ok.  However, around six o’clock this morning, they decided to stop the feeds because her body began rejecting the food just as before.  So, of course, all day today, because she still had food in her system from last night, she has not been feeling the greatest.  They did some ultrasound tests of her abdominal area today in hopes of shedding more light on this issue.  After a couple of days off of feeding to let Haven recover, we will hopefully try Plan B…….they just have to decide what that is first.

The good news is that even though she had a rough day today in reaction to the feeding, the rest of her vital signs have remained good and steady.  This means that her body is starting to get a little stronger.  Also, the drainage from her chest tubes have slowed tremendously over the past 12 hours.  This is also a good thing.  They still are not certain where the fluid was coming from (and would like to know so they can try to make sure it doesn’t happen again), but they are also glad that it appears to be going away for now.

They came down just a tiny bit on the ventilator settings this morning and plan to come down a little more yet this evening.  They want to make the ventilator weaning process very slow so Haven’s body has a chance to adjust properly.  As always, thank you all for your love, encouragement, and prayers.  It makes it easier for us knowing you are there for our family.

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Grandma Ma Says:

    You can rest assured that I am praying all the time for all three of you. I will always be there for you, no matter what. There are people that you don’t realize that is praying for Haven and Mom and Dad too. Love you very much. Love, Grandma Ma.

  2. Sierra Says:

    Good morning Johnson family!
    I am praying for you three today (as always). Baby girl, keep up the good work! You are such a strong little thing. Jeremey and Alison, the two of you are amazing. You are truly an image of a Godly marriage and of Godly parents. If you ever need anything let me know. Have a blessed day!

  3. The Myers Gang Says:

    Thanks for all the latest on Baby Haven,and the pics are adorable. By the looks of the first one, she has down the word mom real good.LOL!! She’s a beauty!! As always guys, you continue to be in our thoughts and prayers. Your strength and faith are totally a inspiration as well as Little Haven. By the way Haven,be sure to watch your 1st Super Bowl, GO COLTS!! Love you all sooo much:)

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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