To those affected by a heart defect:

Seven weeks old today!

January 30, 2007 at 7:07 pm by Mom & Dad

This morning Haven’s chest had accumulated enough fluid for the doctors to put in a new chest tube.  As expected, the tube drained a lot of fluid and created more room for her lungs to expand.  Needless to say, Haven is much happier now and spent the day napping and staring at mom and dad (and the Puffin).  The doctors agree that even though her medical progress has been stalled, she is growing cuter and cuter every day. The gastro-intestinal doctors stopped by today to examine Haven’s digestive problems.  They believe that Haven’s digestive issues may be caused by her critical medical condition and all the medications and treatments she is receiving.  Starting tonight, they plan to start her on a very very small amount of an easily digestible formula and observe her reaction.  They will continue to increase the amount of food very slowly until they reach a point where her slow digestive system starts backing up.  The goal is to get some food going through her system however small that amount may be.  Considering all the variables that could be causing or contributing to Haven’s feeding intolerance, it is too difficult to diagnose a specific condition or problem if one exists. Some times we forget how much Haven’s body has gone through and continues to go through.  All of her body systems have been under great stress since her birth and will require time to heal and function properly.  We aniticipate her recovery with patience and are extremely thankful every time we reflect on how far she has come.

Posted in Recovery #1 | 1 Comment »

One Response

  1. Lori Jo Says:

    I would have to agree with the experts. She does seem to get cuter all the time. Aunt Lori Jo and girls are looking forward to a face to face with the newest female addition to the family. I realize that may be awhile and I know patience is a virtue but tell that to my girls! Seriously we love you all bunches and pray daily for your strength and Haven’s recovery.
    Love from Allendale!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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