To those affected by a heart defect:

Still tube-less

January 29, 2007 at 11:13 pm by Mom & Dad

Haven had a calm day today as she slept most of the time. We usually like to get a post written earlier than this, but over the past several hours Haven has been rather uncomfortable, so we have been trying to get that figured out.

They did not replace the chest tube today because the x-rays showed us that there wasn’t quite enough fluid around her lung to safely re-insert the drainage tube. Although she is now starting to show signs that fluid is building up again, they are hoping to be able to make it through the night without the chest tube. We’re certain they will be putting it back early tomorrow morning.

We’ve been told that the gastro-intestinal specialists will be coming by to take a look at Haven regarding her feeding issues. They want to get her feeding as soon as possible, but realize she is not able to handle it at the moment. From the two tests she’s had so far, we are thankful to know that there don’t appear to be structural problems. The specialists will be helping us discover other causes for her feeding intolerance.

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. Great Grandma Dyke Says:

    We are all praying daily for Haven and have placed our faith in the Lord above.

    God Bless you all

  2. G.G.Uncle Virgil 'n Aunt Bonnie Says:

    The latest pictures of Haven are just darling. Seeing her in motion is so cute. And we love the ones with her daddy ‘n mommy. She’s so sweet with all her stuffed animals too. Thank you for taking the time to keep us updated. You’re always in our prayers!!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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