To those affected by a heart defect:

Feedings on hold again

January 28, 2007 at 8:33 pm by Mom & Dad

As you know, Haven started receiving milk through her new feeding tube on Friday night. Unfortunately, over the past 24 hours her tolerance of those feedings have taken a wrong turn. She has been heaving and vomitting quite a bit since yesterday. Strangely, none of the milk has been coming up. So, due to this, they have stopped her feedings again. Though the gastro-intestinal specialists wanted to wait to see her until she was off the ventilator, we’re hoping they’ll come and take a look tomorrow given these more complicated circumstances.

Her stomach area has become increasingly more swollen (we think maybe due to her feedings), though her chest swelling has come down quite a bit. Unfortunately, her left chest tube (the first one that drained almost 2 liters all by itself) came out on its own this evening. The current theory is that she was draining so much that the hole that the tube was in became bigger which made the tube come loose and fall out. They are in the process of deciding whether to try and replace it tonight or wait until tomorrow when more people can be in on the decision. We’ll see. Hopefully, tomorrow when all of her regular doctors are back we can get things back on track for the week. We’ll let you know of the new plan of action tomorrow.

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Laurie Says:

    We pray God’s comforting hand on Haven as she continues to heal.
    Sounds like Haven has had a rough couple of days.
    We will also be praying for wisdom for the doctors as they determine the next steps in Havens’ care.
    May you as parents to this little doll draw on God’s strength for all you need.
    Will be watching for your update tomorrow to see how the day has been going.
    As always our thoughts and prayers.
    Laurie
    P.S. Just want you to know that there are many people in Lansing who are praying for Haven. She is touching many lives!

  2. Sierra Says:

    What beautiful pictures of a beautiful girl! It’s great to see a little bit of her personality. I am praying that today is a better day for Haven. Looking forward to an update.

    Love and Prayers,
    Sierra

  3. Marcia & Natalie Says:

    Hey you guys!! Thank you sooo much for taking the time to keep us updated about your adorable baby’s happenings. She is so precious!! God will make a way where there seems to be no way. He is The Way, He is The Truth and He is The Life.
    We are praying for you all always. Remember to give extra hugs and kisses to Haven Leigh for us. Sleep tight. Love ya!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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