To those affected by a heart defect:

New pictures coming soon!

January 27, 2007 at 6:00 pm by Mom & Dad

It’s been a fairly quiet day today. Haven has been getting milk through her new NJ feeding tube for over 24 hours now. Since the food is currently bypassing her stomach, she has taken it pretty well to this point. They have even been able to increase the amount of milk a little. The gastro-intestinal doctors will examine her stomach problem further once she is off the ventilator. The ventilator is being very slowly turned down. Hopefully, next week she’ll be strong enough to be breathing on her own. Her chest continues to drain, but the rate is slowing down. It’s amazing to see that over two liters of fluid has come out of this little baby’s chest in three days! We have a new set of pictures that will be appearing on the site soon, so keep your eyes out. There are some awfully cute ones!

Posted in Recovery #1 | 1 Comment »

One Response

  1. Abby Tumbleson Says:

    Hey Haven, I’m glad to hear that you are not depending so much on the ventilator and breathing more on your own.GreatJob!!! Mr. Johnson and Alison just keep praying, the Lord has brought you through this far. There is no telling of was blessing He will give you next. Trust in the Lord with all your heart,
    And lean not on your own understanding;In all your ways acknowledge Him,and He shall make your paths straight.Proverbs 3:5-6

This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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