To those affected by a heart defect:

Re-recovery

January 15, 2007 at 6:47 pm by Mom & Dad

Haven is back in her room now after surgery. They opened her chest again in order to make some corrections to the reconstruction of her heart (surgery #6). These adjustments seem to have made the problem better for the time being. The surgeon said her cardiovascular system is very sensitive to even the slightest changes — one of the most sensitive he’s seen. This means that a very fine line has to be walked when trying to find the right balances for Haven’s heart to function. As we saw this morning, if conditions aren’t quite right, things can get complicated real fast. The adjustments they made today seem to be working for now. She has been back on the ventilator (which is breathing for her) since the emergency this morning. They want to try to get her to be breathing on her own again as soon as possible. Currently, she is sedated and paralyzed again so she can rest through the night. They say this is quite a set-back, but Haven will continue to fight through this battle as she has with all the other battles she has faced in her short, five-week-long life.

Posted in Corrective Surgery | 5 Comments »

5 Responses

  1. Shelb :) Says:

    Hey Guys. I hope all things went well in the surgery. I hope Haven will get better soon and make all the pain go away. She has been a real trooper through all of this mess. Prayers and Thoughts are still with you.
    Love and best wishes,
    Shelb 🙂

  2. Sierra Says:

    Good morning Johnson family! I am praying for you baby Haven! God is doing a wonderful work in you! I am praying for you too Alison and Jeremey. Try to get some rest and relax (which I am sure is easier said then done). I hope today is a great day!

  3. Rob , Becky and Tara Says:

    Hi Guys, We’re praying that today is a good day for all of you and that Haven responds well to yesterdays events.

    Much Love from the Banaszaks

  4. Amber and Mike Says:

    We are soo glad that Haven is adjusting to all the things that has been thrown her way and we know that she has the best parents in the world to help her do so 🙂 We’re also thankful for this site as it allows us to know what’s going on with her even though we can’t see her! Thanks for the site…We love you all!!!
    Amber and Mike

  5. G.G.Uncle Virgil 'n Aunt Bonnie Groff Says:

    As you said, Haven may be walking a fine line but it’s wide enough so Jesus can be right there holding her. Children are so special to Him!
    Your web site has made Haven Leigh special to us too. Love ‘n Prayers

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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