To those affected by a heart defect:

Haven's Story

2 Steps Forward, One Step Back

January 15, 2007 at 10:06 am by Uncle Justin

This morning Haven has taken a step back. Word says that her lungs are not getting enough blood (the opposite issue she had during her first HLHS surgery). However, the doctors are confident that they know what to do to correct this insufficiency. 

As soon as they can, they will put Haven back into surgery and take off a restrictive band on her heart so that more blood can reach the lungs. Hopefully this will put us back on course, but as with any open heart surgery with a special baby like Haven, nothing is 100%.  

Just like the saying goes we are doing a dance and Haven has the lead. When she decides to take a step back we follow in step.

Keep Haven and her doctors in your prayers as she goes back to surgery this afternoon.

Uncle Justin

Posted in Corrective Surgery | 2 Comments »

2 Responses

  1. Shelb :) Says:
    January 15th, 2007 at 12:13 pm

    Hey Guys. Sorry to hear about that. I hope all goes well for Haven. I hope this surgery can correct the problem. You all have been in my prayers and thoughts. Best of Luck and Best wishes to all of you.
    Love, Shelb ~*~

  2. Grandma Ma. Says:
    January 15th, 2007 at 12:48 pm

    Hang in there. Will keep you all in my prayers, and a special one for our Baby Haven. Love, Grandma

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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