To those affected by a heart defect:

One Month Old Today

January 12, 2007 at 8:34 pm by Mom & Dad

Haven has been sleeping most of the day today. Although it looks like she’s off of the ventilator for good, she struggled today with several issues. Besides her fever, she has been back and forth with her blood gas (oxygen & carbon dioxide) levels. She has been very irritable and uncomfortable as well, but this evening she was able to relax for a few minutes. We can tell she’s getting sick of this hospital stuff (all those tubes in her nose and chest and other places), but she’s a fighter and she’s come a very long way. We are so thankful for our little family and the precious time (one month today) we’ve all had together. Hopefully, tomorrow she’ll be feeling better and be able to enjoy us as much as we enjoy her.

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Auntie Judie, Uncle Gordy & Vicki Says:

    Happy 1st month birthday!!! We are continuing to pray about little Haven’s breathing and for her to get stronger. We do know (Judie first hand) how hard recoveries can be and how quickly one tires of hospital beds! Hopefully Mommy & Daddy have a more comfortable mattress. You don’t know how much we want to see you in person!!! Hope it’s soon, but we have to learn how to get to y’all. When you are well enough, no matter how long it takes, you can have mommy & daddy bring you to Michigan and we will have a blow-out party. That means a really big, really fun, lots of love and presents type party!!! Tell your folks to give you extra hugs & kisses for us!!! We love each one of you and pray daily, as does Emily and Vicki and even our church family. You’re practically famous here in Battle Creek. All our love,
    J, G, E, V.

  2. Keaton Becher Says:

    Hey Haven Leigh!! Happy 1st month birthday. Hang in there girl. Mr. J., Alison, and you are constantly in my prayers. I love all of you!

  3. Abby Tumbleson Says:

    I know that it’s a day late but I still wanted to wish you a Happy 1st month B-day Haven. You are a blessing, to your parents,family, and to others that know you. God will use you in his own special plan that he has for you. Mr. Johnson, Alison and Haven I’m praying for all of you. Love ya.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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