To those affected by a heart defect:

A New Room

January 11, 2007 at 9:26 pm by Mom & Dad

Today they moved Haven to a new room. She is still in the Intensive Care Unit, but since she doesn’t have quite as many machines keeping her going, they wanted to move her to a smaller room so they could use the big room for other kids who need lots of machines. We are trying to look at it as one step closer to coming home.

Unfortunately, Haven has had some troubles today. They have had to stop her feedings again because the fat from the milk is leaking out of her chest tubes (you may remember she had this problem before). Also, her blood’s oxygen saturation has been low today and it has gotten lower as the evening has progressed. She is still breathing oxygen in through her nose, but for some reason her blood isn’t getting as much oxygen as it needs. Sometimes after we have a few good days, we have to remind ourselves that she is still a very sick baby that needs lots of attention. If all she had were really good days with nothing going on, then she probably wouldn’t need to be here any longer! Makes sense.

As always, thank you for all of your kind comments and encouraging support. It means so much to us to know that you are checking up on us and praying for our little family. Haven appreciates it, too! THANK YOU.

Posted in Recovery #1 | 6 Comments »

6 Responses

  1. Anonymous Says:

    Hey Haven! Keep fighting…and I’m praying for you guys!

  2. Grandma M Says:

    Hey Baby Girl, hang in there. I Love you and your parents very much,and I am always praying for all of you.Remember Jesus loves you too. Love, Grandma M

  3. Madilyn U. Says:

    I work with Grandpa M and I have been keeping you in my prayers and will continue to do so. Keep fighting!! God Bless!

  4. The Myers Gang Says:

    HAPPY 1 MONTH BBIRTHDAY BABY HAVEN
    We love you and are hoping you have a better day yet today.
    Love and prayers 🙂

  5. Laurie Says:

    Look at those big liquid brown eyes! What a sweetheart. Give her a kiss on those chubby little cheeks. Haven is proving to be quite the fighter. As usual, thank you for taking the time to give the latest ‘Haven
    Headlines’.
    Thoughts and prayers,
    Laurie

  6. Great-Great Uncle Virgil 'n Great-Great Aunt Bonnie Says:

    Thanks for the updates.Even though we’re not near Haven, she seems really close. Your family is always in our prayers. We love looking at her picture, what a doll! Love, Virgil ‘n Bonnie

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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