To those affected by a heart defect:

One less tube today

January 5, 2007 at 2:17 pm by Mom & Dad

Haven had one of her three chest tubes removed this morning.  This is good because it means that her chest is leaking less fluid.  There are also rumors that they may attempt to extubate her (take her off the ventilator) sometime during the next few days.  Nothing is for certain, of course, but they have been coming down on her rates slowly the past couple of days.  Currently, she is doing more breathing than the machine does for her. 

Unfortunately, she has not been able to keep a lot of formula down, and she often will get pukey (even when there’s hardly anything in her tummy).  So, they’re trying to figure that one out.  Not that we are happy about her tummy being upset, but we’ll take a tummy ache over heart problems any day. 

Fluids are still coming off at a good rate.  She’s almost back down to her birth weight!  She has also been very awake and alert the past several days which has been neat for us.  When those bright big eyes are open, it’s hard for us to leave her alone!     

Posted in Recovery #1 | 4 Comments »

4 Responses

  1. erika Says:

    What a little rockstar you’ve! got! Keep up the amazing work, Haven!

  2. Mike & Marcia Says:

    Wonderful!! Awesome!! Beautiful!! She is a doll baby!
    I am so excited for you guys and for Haven. Each day is a day closer that you will be able to bring your little precious baby girl home. Continue to stay focused on the Lord God Almighty. He holds the future in His Hands!! God Bless.

  3. The Myers Gang Says:

    FANTASTIC!! It is so great to here the positive progress Haven is making. The latest photoshoot is AWESOME. She looks so alert and I can certainly understand why it is so hard for you not to leave her alone.You guys are so blessed to have her, as she is to have you as her parents. The best is yet to come. GO HAVEN!! Love you all:)

  4. Keaton Becher Says:

    Hey Mr. J. and Allison!! Keep up the good work. I’m looking forward to come and visit you soon (maybe in my drum major outfit if you’re lucky!). And you Haven, Bless you, and the wonderful family you have been born into. Mr. J. and Allison will be two great awesome parents! With Sincere Love to the whole family! You’re always in my prayers!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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