To those affected by a heart defect:

Slowly but surely

January 4, 2007 at 3:06 pm by Mom & Dad

Haven is looking great. As she continues to rid herself of unnecessary fluids, her heart has been maintaining satisfactory numbers. They would like to see her heart rate come down a little, but her blood pressure has been doing so well that over the past 24 hours, they have turned off two of her medicines. Several days ago, they had to stop feeding her milk because she did not take to it too well. They went back to a special formula that is less fatty than milk, and she seems to do alright with that. They are hoping to remove a couple of her chest tubes early next week. We’re still moving in the right direction. Don’t forget to check out those new pictures that have been posted!

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. The Myers Gang Says:

    Fantastic!!! So glad to hear that Haven is doing so great, she is a strong little girl with a lot of people backing her up. The newest pictures posted are so sweet and she looks good for the long journey that she has endured. We will continue to put you all three in our thoughts and prayers.
    Love ya!!

  2. erika Says:

    Oh – that is fantastic!

    I know you guys are so focused on Haven – and rightfully so! – but PLEASE don’t forget to take care of yourselves as well. Now that Haven’s making some great strides, try to make a point to do things that take care of YOU. Especially you, mama. Don’t forget – you just gave birth!!!!

    Seriously – our nurses told us to take advantage them – the “most expensive, highly trained babysitters” out there… because when Haven goes to the floor (step-down, or whatever it is your hospital calls it), it is going to be all mama and daddy, and you’re going to need your energy! Plus I think we all tend to focus on the baby and forget about the emotional rollercoaster you guys are on too. Be good to yourselves.

    Thinking of you guys!

  3. Becky, Rob & Tara Says:

    Great News!! Glad to hear of Haven’s progress. Thinking of and praying for you often!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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