To those affected by a heart defect:

Sternum Closed!

January 2, 2007 at 4:51 pm by Mom & Dad

We just spoke with Haven’s cardiovascular surgeon, and he informed us that this time the operation to close Haven’s chest was successful! So far, her heart has tolerated the smaller space and is holding steady. He reminded us that the next 12 to 24 hours are extremely crucial to see if she can maintain acceptable levels of blood pressure, heart rate, blood gasses, etc. She still has her three chest tubes and is still on many medications. They estimate Haven will remain in the Intensive Care Unit for at least a week or two yet before moving to a less critical unit where she can begin recovery before coming home (assuming there are no more set-backs, of course). So there’s still a very long road ahead for her, but this was a step in the right direction.

We were reminded today of how thankful we should be to have our little girl right now. The condition she has is the most serious heart problem to deal with and to recover from, and she has been down some very bad roads up to this point (ECMO support for 7 days, open sternum for 18 days, kidney failure, edema, not to mention the whole heart thing!). So we’re hoping for no more wrong turns. We sure do love our little Haven and are very thankful that she’s come so far!

Posted in Recovery #1 | 6 Comments »

6 Responses

  1. The Myers Gang Says:

    Jeremey and Alison, You all were in our thoughts and prayers through out the day as any other, just a little more today. Your faith is outstanding and you have been the upmost inspiration to us in so many ways. Little Haven you are one tough little girl, continue to fight and get stronger, are prayers are with you Baby girl. We love you all.

  2. Randy and Lori Says:

    Jeremey, Alison and Haven
    You are in our thoughts and prayers constantly.

    Thank you for the updates.

  3. Sierra Says:

    PRAISE THE LORD! I am glad the surgery went well. As always, I praying for all three of you!

  4. Uncle Justin Says:

    Keep up the good work Haven!

    I’ve posted you’re latest photoshoot on the picture page.

    (Don’t worry darlin, you’re not puffy, just plump. It works.)

    Love you beautiful!

    Uncle J

  5. Steve and Rita Zerbe Says:

    Praying daily for this precious life that God is showing His glory through. Allison, don’t know Jeremy, but as sweet as you are, he must be a gem…Haven is fortunate that you are her parents. Hang in there.

  6. Riney Tyckoski Says:

    Thinking about you and your family often. Take those baby steps Haven! I know someone at Riley Hospital. If you need info in a hurry, please let me know.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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