To those affected by a heart defect:

A Good Day

December 30, 2006 at 5:22 pm by Mom & Dad

Haven has had a relatively good day. Nothing earth-shattering has happened, so that makes it a good day. Her numbers have been good all day and she is working on shedding off those fluids. Since she has been off of the paralytic she has been opening her eyes as well as wiggling her hands and feet. She’s still on a lot of medicines, so she’s not entirely “awake”, but the movement and eye contact is a wonderful sight for us!

Another good thing happened today: Haven is now being fed again through her N.G. tube. They would like to slowly increase the amount of milk she receives over the next several days just to get her body used to digesting food again. We were also informed that she is on the list for Tuesday to be in the operating room getting her sternum closed up. Hopefully, she will lose enough fluid and have good steady numbers between now and then. So, at least for the next couple of days, we wait.

Posted in Recovery #1 | 4 Comments »

4 Responses

  1. erika Says:

    FANTASTIC news!!!

  2. cooper's Says:

    This is fantastic news and we pray that all goes well in the next couple of days so the Dr.’s can finish the job.

    God bless you all

  3. Laurie Says:

    What a little sweetheart little Haven is. I can’t imagine what it is like on your end but I think of you both and Haven all the time. I have five grand children and know that I can only entrust them to Jesus. And that is a comforting feeling and am so glad to see you are doing the same. God Bless and Happy New Year to you and your precious family. Thank you so much for the updates on this site. Haven has a special place in alot of peoples lives.
    Hugs & Prayers , Laurie

  4. Carissa Piano Says:

    HAPPY 2007!!! Glad to hear Haven is stabilizing and moving around! Those tiny improvments are a huge blessing. We are still thinking about you guys and praying for you. Hope you have a good New Years!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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