To those affected by a heart defect:

Still Waiting

December 30, 2006 at 12:18 pm by Uncle Justin

Received an update on Haven’s condition last evening.

Haven had a good day yesterday. The doctor’s are gradually taking her off the paralysis so she is able to move a little bit. However she still needs a closing surgery, so she is still restricted in her movements.

The doctors would like her to release more fluid so that when they close her up there is less pressure on her heart. She is steadily releasing more as she is moving a little.

Hopefully, if she stays stable they could have a surgery to close her up early next week.

More to come,

Uncle Justin

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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