To those affected by a heart defect:

Not Quite Ready

December 28, 2006 at 4:17 pm by Mom & Dad

We just met with the head surgeon after Haven’s operation. He said she just didn’t want to do it today. They attempted to close her sternum a couple of times and she did not respond favorably either time. They also attempted to make some adjustments to one of the new “parts” of her heart, but she didn’t like that either. So, they just cleaned up several of her lines and sent her back to the ICU. The sugeon said he thought today might be tricky being that she is still VERY puffy due to the amount of fluid she has retained. Basically, because she is so swollen, her heart gets squished too much by other things (like lungs) when they tried closing her up. They want to begin taking her off of the paralytic drug so she will move around a little bit in hopes to mobilize some of that fluid. The kidney doctors say that her kidneys are in stable condition, and everyone seems confident that she will likely lose that fluid at some point. As of now, they will reasses the situation daily in hopes to try the procedure again sometime next week.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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