To those affected by a heart defect:

No Operation Today

December 27, 2006 at 1:15 pm by Mom & Dad

We just spoke with the doctors and they have decided to postpone Haven’s operation to close her chest. Her heart still has abnormal rhythmic activity and is beating too fast. Her blood pressure has been fluctuating quite a bit and often drops well below the level they would like to see her maintain. They will continue to try to address these issues so her chest can be closed soon, but are unsure when that will be: could be tomorrow if they can get things stabalized soon. The fluid retention game is still being played. She swelled up a little more over night. The kidney doctors say the plan is just to wait for her body to move the fluid around until it gets to the right places to be released. That can be a long process (as we are finding out). With the amount she needs to shed, they say her kidneys have a lot of work to do yet. We will continue to keep you updated as we receive information. Other than that, as you may be finding out, we do a lot of watching and waiting as small adjustments are made here and there to try to get Haven’s numbers where they need to be.

Sometimes we start to get impatient, but then we remind ourselves what a blessing she is and that without any of these interventions, she wouldn’t have a chance. The people here at Riley are wonderful and very good at what they do. Hopefully, Haven’s body will be strong and respond well to the treatments she is receiving. As always, thank you all for checking on her, staying in touch, and keeping her in your prayers.

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Uncle Justin Says:

    We love you guys. We’re praying for your comfort, patience, and strength.

    This is exactly what the Bible speaks to when it says LONGsuffering.

    “But in all things approving ourselves as the ministers of God, in much patience, in afflictions, in necessities, in distresses, …

    “… in tumults, in labours, in watchings, in fastings;…

    “By pureness, by knowledge, by longsuffering, by kindness, by the Holy Ghost, by love unfeigned,

    “By the word of truth, by the power of God, by the armour of righteousness on the right hand and on the left, …”
    – 2 Cor 6:4-10

    Jer, Alison and Haven, our hearts are enlarged for you!

    2 Cor 6:11

  2. Randy and Lori Says:

    Just wanted to let you know that we are praying for you and Haven. We pray for God’s healing, comfort, patience and peace.
    Take care, love Randy and Lori

  3. Rob , Becky and Tara Says:

    You’re never far from our thoughts and prayers. Your lives continue to be a blessing to everyone around you, far beyond what you could ever imagine. What an awesome testimony!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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