To those affected by a heart defect:

She’s On Her Own Now

December 23, 2006 at 1:30 pm by Mom & Dad

The surgery to take Haven off of the ECMO cardiac support was successful. She has regained a little color since last night and is trying real hard to shed some more fluid. Her heart is now functioning completely on its own without the assistance of any machines, though she is still hooked up to the ventilator and lots of medicines through several lines. We’re glad to know that we have taken a step in the right direction. Now we just wait to see if her little heart will be strong enough to sustain things on its own. She’s been enjoying her daddy’s piano playing at her bed side and is looking forward to the day when she can wear her new booties mommy is knitting for her.

Posted in Recovery #1 | 8 Comments »

8 Responses

  1. Marcia, Mike, and Natalie Says:

    Hallelujah! We are so excited about all the progress that Haven is making! We can’t wait to see her, and Mike can’t wait to take lots and lots of pictures! We are still praying for all of you. We love and miss you!

    P.S. Valentine, Poochie, and Jordy are all howling for Haven!

  2. Grandma M Says:

    Hurrah!!!Glad to hear of the good news. Thank you Jesus. I new she could do it, with the Lords help. Love you all. Love Grandma

  3. McMullin Grandparents Says:

    That is wonderful news! Haven, you are such a fighter. You make us so happy. Wish we could be there with you, loving on you, listening to your daddy play the piano, and watching your mommy knit your booties. Grandpa is letting his ankle heal for a few days before we head your way. Tell your daddy and mommy to stay strong in their amazing faith. We love you and think about you all the time.

    See you soon,
    Grandpa and Grandma McMullin

  4. The Myers Gang Says:

    YIPPIE!! for Haven, keep fighting little girl, we are all cheering you on. Mom and Dad your faith is incredible. You both are such an inspiration. Love and prayers are still flowing through our hearts to all three of you. Thanks for the update! Miss you all.

  5. Greg and Cindy Tieman Says:

    Praise the Lord for Haven’s progress. We are keeping all of you in our prayers.

  6. Katie, Carl and Evelyn Says:

    We are greatly pleased to know of Haven’s progress. Thank you so much for sharing yourselves with us. Jeremey, we all should be so lucky to have you playing piano while we loungue. We’re praising God for the testimony he has given all three of you. We love you all. Katie

  7. Lori Jo Says:

    Merry Christmas and we are praying daily for health and happiness. Hope to see you all soon.
    Love and Kisses from Uncle Rog’s family!

  8. Grama Dyke,Todd,Mardell and Austin Says:

    We are wishing you the best of health for holidays and may God spend extra time and effort on that precious little one of yours. We are all praying that the Lord smiles upon your family this holiday.

    Our Love and prayers
    Grandma and the Coopers

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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