To those affected by a heart defect:

Back on Track

December 21, 2006 at 8:50 pm by Mom & Dad

After some readjusting, Haven is back on track this evening. They plan on slowly lowering her ECMO cardiac support considerably throughout the night tonight. If she handles that alright, they would like to take her off the ECMO tomorrow afternoon. You may or may not remember, but coming on or off of ECMO requires another operation. So, if she does well tonight and through the morning, she will be back in the operating room tomorrow to take her off of the ECMO machine. She will most likely remain in the Intensive Care Unit for some time after this operation as there is much healing that is yet to be done. We are happy about the prospects, but as with any operation, it can seem scary. So we’re excited and anxious all in the same breath. We’ll keep everyone posted throughout the day tomorrow (Friday).

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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