To those affected by a heart defect:

Haven's Story

Still resting…

December 19, 2006 at 1:51 pm by Mom & Dad

They have decided to begin trying to wean Haven off of the ECMO cardiac support. They began turning the machine down ever so slightly a couple of hours ago. She did alright for a little while, but her blood pressure has fallen again, so they have decided to wait some more. She’s just not ready for it yet. We spoke with a doctor regarding her kidneys not working well. They are working on trying to come up with an intervention that will stop her body from swelling. As always, thanks for your prayers and support. Hopefully we will have some good news to report to you all some time.

Posted in Recovery #1 | 1 Comment »

One Response

  1. Sierra Says:
    December 19th, 2006 at 3:52 pm

    Praying the ULTIMATE PHSYICIAN will lay His healing hand on Haven’s little body today.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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