To those affected by a heart defect:

Haven’s first Sunday

December 17, 2006 at 1:12 pm by Mom & Dad

Haven’s heart rate has come down some more over the night (this is still a good thing). Due to the trauma of the surgery, Haven is experiencing Acute Kidney Failure, and attempts to use medications to make her urniate have not been successful as of yet. If you thought she was a little chubby from the pictures, she’s definitely more puffy now: very swollen due to not being able to produce urine. We still think she’s very cute, though. The doctors do not plan on any more intervention regarding urine production until tomorrow unless the situation worsens more than what it is right now. As always, thanks for the comments and the emails. We can’t respond to everyone personally right now, but do know that we do read each and every one and appreciate them very much.

Posted in Surgery #1 - Norwood | 9 Comments »

9 Responses

  1. Randy and Lori Says:

    We are praying and thinking of you constantly.

  2. Mike,Marcia & Natalie Says:

    Hey Guys,
    Hang in there. God is still in control!! Everything is in God’s timing. We are remembering you in our thoughts and prayers!

  3. John & Lisa Mallory & boys Says:

    Hoping for the best for you both and Haven. We will be praying for you. We love you all.

  4. Aunt Sally Says:

    Still keeping ya`ll in my prayers. Keep the faith! Love, Aunt Sally.

  5. Leeand Louise Says:

    Hope you had a great Lord’s Day. Thanks for the updates.
    we Know hospitals can be scary but sounds like you and Haven are surrouned by an excellent medical team, the precise team God has chosen. Zephaniah 3: 17 says ” The Lord your God is with you, he is mighty to save. He will take great delight in you, he will quiet you with his love, he will rejoice over you with singing.” Listen to
    his song tonight! We Love you all.

  6. (GREAT) Aunt Lori Jo Says:

    She is beautiful! Uncle Rog and I have been in the dark as far as any heath issues, so now we are trying to catch up on some praying time. Hope you are getting enough sleep. We will keep praying and trusting in God’s plan for little Haven. We (especially my girls) can’t wait to meet her. Merry Christmas and Happy first New Year.
    Love Aunt Lori Jo

  7. Gr. Grandma M Says:

    Good morning everyone. I hope it was a good and restful night for all three of you. I would love to see you and can’t wait to see my beautiful Baaby Haven. I am still praying for all. God bless you all and keep the faith. Love, Grandma M

  8. Sierra Says:

    Hey guys! I was just thinking about you three. I heard “Breath of Heaven” on the radio (Jeremey will have to tell the story). I’ve never really paid attention to the lyrics until today. That song had become my prayer for the Johnson family today. That the Breath of Heaven would poor out on you. I hope you are having a wonderful day!

  9. Erik Amy and Grace Says:

    All three of you have been in our constant thoughts and prayers. Today we are specifically praying that God will give you a respite of peace and calm in the midst of this storm. “Peace I leave with you; my peace I give to you; not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid.” JOhn 14:27.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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