To those affected by a heart defect:

Tomorrow’s the big day

December 14, 2006 at 6:02 pm by Mom & Dad

Haven had a great night last night.  The nurses found out that she just loves to sleep curled up on her tummy.  Alison was discharged from University Hospital this afternoon and is slowly regaining strength.  We met with a lot of doctors on Haven’s “team” today.  She will be taken to the operating room tomorrow morning at 7:00am.  When it’s all said and done, we should be able to see her again around 6:00 or 7:00pm tomorrow evening.  She will now be in the Pediatric Intensive Care Unit (PICU) on the second floor of Riley to be more closely monitored (she has a nurse assigned specifically to her 24 hours a day).  She can be there anywhere from 1 week to 3 or 4 weeks to recover before going to a less intensive unit.  I know some have been asking about an address for us down here.  If you would like to drop us a note via mail, please send it to:

Jeremey & Alison Johnson, Room 15
c/o Ronald McDonald House
435 Limestone Street
Indianapolis, IN  46202

We’ll try to keep you updated as we receive updates throughout the day tomorrow.
 

Posted in Info, Pre-Surgery #1 | 1 Comment »

One Response

  1. Mike,Marcia & Natalie Says:

    We pray God’s peace and protection on little Haven and mommy & daddy!! We will be in an attitude of prayer for you all day. God is in Control!
    Love to you!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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