Haven: Day Two… or is it three?
We can’t express to you how much of a blessing it is to know that you all are out there checking up on us. Every comment we read gives us that much more strength. Thank you!
We are continually being told that Haven is doing very well (considering she only has half a heart, of course). We started nursing Haven yesterday, but she is not quite the pro-eater yet. From the minute she was born, she has been receiving Prostoglandin intravenously (this will keep the hole in her heart open until the first open-heart surgery). Prostoglandin has several side-effects, one of which is making the baby very tired. So, most of the time when we try to nurse, she just curls up next to Mom and sleeps. SO, they put in an NG tube (feeding tube through the nose) last evening just to make sure we can get her plenty of food to keep her weight up. She can still nurse with the NG tube. She is scheduled to eat every three hours and we try to make it to at least three of them a day.
The cardiologists are happy with how stable she is and how big she is and have decided to perform the first open-heart surgery this Friday. We will be meeting the cardiatric surgeon tomorrow. We do not yet know exactly what time the surgery will be, but from what we understand, it is roughly a 17-hour ordeal.
The next bit of good news is that Alison will hopefully be discharged from IU Hospital tomorrow sometime and though as of this afternoon, the Ronald McDonald house was still full, we received a surprise phone call this evening of an opening!! We are very thankful for this because now we can stay here close to our baby!
We are anticipating that we will be able to answer some of your comments and personal emails next week after Haven has come out of her surgery. We will have a little more time then since we will not be able to spend quite as much time with Haven for several days after surgery.
We love you all!
Jeremey & Alison (and Haven Leigh)
Posted in Pre-Surgery #1 | 8 Comments »
December 13th, 2006 at 10:42 pm
Hi all. I just wanted to say that the pictures are great. She is so cute. I am still keeping you all in my prayers. I hope things will go well for Haven when she has her surgery. Great job to all of the supporters and good job to Mom and Dad for being so good to to Haven and for going through this time. I love seeing my new cousin. Thanks for the updates. I want Jer to know that my Band Concert is tomorrow. I’ll know he will be there in spirit. I will play a song for him, mom, and Haven. Say hi to her for me! :)That is great news!!
Love, Shelb 😉 ~*~
December 13th, 2006 at 11:02 pm
Jeremey, Alison and Little Haven, again it is so GREAT to here the positives of how well Haven is doing. God is so good,and he is going to be there thru it all. The pictures are so touching and she is a pretty baby girl. Our thoughts and prayers are with you all.
Love ya,
Tammy & Jerry
December 13th, 2006 at 11:47 pm
Thanks so much for the updates. You know we are praying for you guys. we are coming to Indy on Saturday, and wondered if we could take you both out for a bite to eat, or just sit with you. We have a little something for you. Call if you want to.
December 14th, 2006 at 9:19 am
Hey guys,
The pictures of Haven are so good!! I have been showing them to anyone who will look!! Mike is really to excited about taking new family pictures of you guys!! I have alot of people praying for you before during and after the surgery.
Love Ya!
December 14th, 2006 at 10:47 am
YEP! Haven is the most beautiful baby ever. Thank you Alison and Jeremey for sharing some time with us yesterday. You all look great and baby Haven is soo precious. We don’t stop praying for you.
December 14th, 2006 at 11:35 am
Congratulations! Haven is beautiful. Know that you are all in our constant thoughts and prayers. Our prayer is that God will continue to strengthen all of you as continue on this journey.
December 14th, 2006 at 3:21 pm
Haven is beautiful! It is so fun to see pictures!!! Allison I cannot wait to talk to you sometime (not for a little while I’m sure!) and get your version of the whole birth experience. You know I like the details!! 🙂 I am soo glad you were able to start nursing Haven.. you have no idea how much that will help you and Haven in the long run. Keep it up!! She’ll become a pro in no time! We are continually praying for you guys and it is obvious that God has control over this whole situation. He is amazing! Enjoy your beautiful miracle! Don’t hesitate to call or e-mail if you have any NICU questions! I know it can be a scary place.
December 14th, 2006 at 4:33 pm
Jeremy & Alison,
I am ‘Grandpa’ Kevin’s cousin. I have been getting updates from the family on Haven Leigh (I love her name). She is a precious baby, those cheeks get lots of kisses I’m sure. Just consider me one more person praying for your little baby girl. It sounds like you are surrounded by a wonderful support system of family & friends. From me & my family to yours please know you are in our thoughts & that lots ‘n lots of prayers are being prayed for both of you, Haven Leigh and the doctors that are performing her surgery.
Love, hugs & prayers,
Laurie