To those affected by a heart defect:

Haven sets the pace

May 17, 2007 at 2:58 pm by Mom & Dad

Haven slept very well last night.  She also slept most of the day today.  When she was awake, she seemed to us to be a bit lethargic and tired.  When her daily lab results came back this morning we found that some of her levels were a little off.  One level specifically caught some attention because it seemed so high. 

So it appears that Haven’s body is telling us a little something about how it handles certain parts of her nutrition.  We’ve always kind of known that she doesn’t handle fats very well, but today has proven that more.  This imbalance would explain her lethargy and lack of energy.  We’ve made several changes today in an attempt to remedy this specific issue, but it could take until tomorrow or the next day to see results.  Haven is just reminding us all of who sets the pace around here. 

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Michelle Halcomb Says:

    Just wanted to send an encouraging word. The Lord has laid this upon my heart to share. “But those who wait upon the Lord shall renew their strength;They sahll mount up with wings as eagles,they shall run and not be weary, they shall walk and not faint.” Isa 40:31. Praying as always, Michelle

  2. Sierra Says:

    Hey there! Watch out for those LIPIDS! 🙂 I hope today is a good day that will give you more answers and puzzle pieces. Have a great weekend!

  3. Uncle Justin Says:

    Its amazing that Haven is still in ICU after all of these months. She continues to ‘fight the good fight’ (2 Tim 4:7).

    While we are ready for things to go a certain way, daily labs correct are thinking back into the proper frame of reference. Haven is not a machine that we can troubleshoot, or a plant that we give chemical fertilizer to, she is a living soul.

    I don’t have daily labs, but I do have daily prayer. Similar to labs, prayer helps me to evaluate how I am doing in the fight.

    While I would think that I have a great plan for how life should be, prayer reminds me that God does not have a suggestion box.

    Proper prayer places me back into focus. God is neither a genie in a lamp, nor a servant of mine that I can control into performing what I wish.

    God has instead provided me with ‘all spiritual blessings’ in his son Jesus Christ. His shed blood on the cross in my place has purchased for me what I could never attain by being good or being successful – eternal life.

    Just as Haven has the privilege of having daily evaluations to know how she is doing, I learn that it is fitting for me to have daily evaluations to have my focus readjusted or else I am prone to get off course. As a result, my spiritual life in Christ becomes lethargic and lacking energy.

    Thank you Haven for teaching us not to mindlessly walk through life, but to be continually evaluating our orientation with prayer in sound doctrine.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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