You Have To Smile
Haven took an afternoon trip downstairs to have her NJ feeding tube placed using realtime x-ray technology to watch the feeding tube move inside of Haven. We were fortunate enough to be able to be in the room during the procedure. It was very interesting, and as we heard the doc say, “Well, this is the first time I’ve ever placed an NJ down a person that also has a G-tube site,” we just smiled.
If only we had a dollar for everytime we heard someone down here say about Haven, “This is the first time I’ve ever seen…,” or “Strange, I’ve never seen THAT before,” or “Hmm…this just isn’t normal.” Haven Leigh is definitely a one-of-a-kind baby, and most everyone down here agrees. But that doesn’t stop Haven from making friends. We are so thankful for the many doctors and nurses that regularly stop in just to say hi and see how Haven is doing even though they may not be attending to her any more.Â
Haven did very well with the whole outing. Feedings were started up again around 4:30pm after we returned from our trip. Since she had not been fed since last Monday, we restarted her feedings at a smaller amount and over the next few days will gradually turn them back up to where they were when we left off last week.  Since her digestive system has had a little break, we want to make sure we don’t stress it out by giving her too much too soon.Â
The other bit of exciting news is that at 7:00pm this evening, Haven got a new room….again….for the 5th time! It seems silly, we know, but we’re not complaining because we were moved into “THE MASTER SUITE”.  Some of you may recall the large room Haven had when she first came to the PICU after her Norwood procedure way back in December. Well, we have the twin sister of that room which is on the opposite end of the hall. The way we understand it, there were some staffing issues that would have left Haven sort of “stranded” (not that she actually would have been stranded). So, the best way to fix the problem, apparently was to just move her.Â
You can only imagine what our nurse thought (since we had already taken a big trip just this afternoon and this decision was made right at the shift change). But we think she made a deal with the powers that be on our behalf: “We’ll only move Haven if she gets the master suite at the end of the hall and doesn’t have to move again unless she’s getting out of here.” Well, they couldn’t promise that last part, but the first part of the bargain was a go. Haven seems to like her new room, and since the room is so spacious, Mom & Dad certainly couldn’t complain either.Â
Posted in Recovery #1 | 6 Comments »
May 14th, 2007 at 7:51 pm
Just wanted to leave you a quick note saying we are thinking of you three and continue to pray for little miss Haven. It is good to hear about her uneventful days and steady progress and of course we enjoy seeing her pictures. You are going to have to make a scrapbook of her adventures! I was glad to hear you enjoyed your first mothers day! Your words are always so meaningful and inspiring, i cannot even begin to imagine how you do it. I came close to having our baby for mothers day but instead got to enjoy her kicks and squirms! We will, however, get to meet our little girl in just a few days. We will be inducing labor starting this Wednesday, May 16th and hope to have a baby sometime the 17th if not sooner! As I’m sure you remember we are very excited and nervous to become parents! Thank you for being an awesome reminder of what a gift it is to bring a child into this world and how that child is completely in the hands of God from the very beginning. We hope Haven continues making baby steps this week.
May 15th, 2007 at 5:15 pm
Hey! I’m sorry I haven’t posted in awhile. My computer at work won’t let me post anymore. I’m glad that things are going well! Good days are wonderful! I am planning on stopping by this week. I cannot wait to see the new room! As always I am constantly praying for you three! I hope that this week is one of progress.
May 15th, 2007 at 7:51 pm
Hey little Haven! I didn’t forget about you, and you sound like your still truckin’! Keep up the good work girl. You and your mommy and daddy are always in my prayers. God Bless All of You!!!!
May 15th, 2007 at 7:54 pm
Hi Guys! It so good to here how well Haven has been doing lately.She is such a trooper. It is so incredible, how she continues to fight and surpass even the best of doctors, but it’s great knowing just how much they care and check in on her the way they do. Alison your thoughts from a mother post just left me with tears and as a mother two, really put so much in perspective for me in the spiritual sense, and I thank you for adding a little special touch to my mothers day. We love you guys and are forever in our thoughts and prayers.Give That special little girl hugs and kisses and save some for yourselves.:)
May 15th, 2007 at 7:58 pm
Hey i forgot to add to my last comment that the pictures on the web site were nothing short of AWESOME thanks so much, she is a beauty.
May 15th, 2007 at 8:46 pm
You have to smile is right!! I LOVE the pictures…my favorite is the one where she is plotting her escape with her friends!!! LOL!! What a sweetie! Can’t wait to see her again soon!! Thank you so much for sharing her pics!