To those affected by a heart defect:

Haven's Story

A Better Day

May 8, 2007 at 7:12 pm by Mom & Dad

Haven had a much better day today.  We are currently in the process of coming completely off of one of her blood pressure medicines (which we had to go WAY up on during yesterday’s events).  We were also able to make some marked postive changes on the ventilator.  She continues to shed fluid (still slowly, but surely).  We had to stop her feedings yesterday with all of the commotion.  We are aiming to start those back up sometime on Thursday.  Hopefully, we won’t have lost any ground with that.  Thank you all for your prayers, love, & support. 

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. G.G.Uncle Virgil 'n Aunt Bonnie Says:
    May 8th, 2007 at 8:43 pm

    Hello Jeremy ‘n Alison, For such a little tyke that daughter of yours can sure keep you hopping, can’t she!? But we know there isn’t another place on earth you’d rather be than right by her side. She’s so sweet. We love the picture where she’s sleeping in her little pink hat, with her flamingo. Hopefully the feedings will go well Thursday.
    Love ‘n Prayers, Bonnie ‘n Virgil

  2. Sierra Says:
    May 9th, 2007 at 5:18 am

    Praise the Lord for good days! Just keep fighting baby girl. You are doing a wonderful job.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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