To those affected by a heart defect:

A New View

May 5, 2007 at 10:49 pm by Mom & Dad

Yesterday we noticed something peculiar about the ceiling tiles in Haven’s room here in the ICU.  Tiny water droplets began forming on the tiles.  As the day moved on into night, the droplets became bigger and bigger.  We were obviously talking with the nurse about it and she was going to get someone to come by and take a look at it. 

At 2:00am the phone rang at the Ronald McDonald house.  It was our nurse calling to let us know that we should not be alarmed when we go to Haven’s room in the morning and find her missing.  They ended up moving Haven to a different room down the hall because the heating/cooling system in Haven’s room was apparently not functioning properly.  So, as opposed to giving the baby a shower from the ceiling, they moved her to a new room.  Room #4.  It’s good to change things up from time to time and get a new view. 

Dialysis continues to be going well:  slowly but surely.  Baby steps forward are much better than any kind of steps backward.  As always, thanks so much for your encouragement and support.  It means so much to all of us.

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. G.G.Uncle Virgil 'n Aunt Bonnie Says:

    It’s nice to hear it was a “room” problem and not a Haven one. Real good to hear the dialysis is going well. If it’s as nice in IN today as it is in MI we hope you two can take time to go out for a walk. It’s hard to believe Little Haven will be five months old next Saturday. We wish you all the best. In our prayers! Bonnie ‘n Virgil

  2. Laurie Says:

    That 2:00am phone call probably made you wake up fast!
    Haven sure doesn’t have a dull moment does she?
    We are praying always for Haven and also God’s loving presence to continue to uphold you.
    Have a great week.
    As always,
    Love & Prayers, Laurie

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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