To those affected by a heart defect:

Slowly but surely

April 30, 2007 at 8:28 pm by Mom & Dad

Haven looks even better today as she continues to loose fluid.  She’s not putting out quite as much as she has been, but still shedding some.  We’ll get there—slowly but surely.  Since we’ve had (thankfully) a couple of boring days, Haven decided to remind us that everyone around here has to stay on their toes.  She spiked a temperature this morning and has kept a bit of a fever for the remainder of the day.  We sent off lots of cultures to determine the cause.  One of the main risks of the dialysis she is on is infection.  Some of them can be pretty bad.  We’re hoping that we can get it taken care of with some antibiotics. 

Also, she has been leaking around her dialysis tube.  They warned that if that happened, then we may have to stop the dialysis until her skin heals up more.  Let’s hope that won’t be the case.  We’ll find out more tomorrow.  Haven is doing well so far allowing us to slowly increase her feedings every day.  The “normal” amount of formula consumed by a healthy baby her size and age comes out to about 27 mLs per hour.  We’re now up to 5 mLs and hopefully 6 by tomorrow—slowly but surely. 

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. Laurie Says:

    The numbers on Haven’s formula are interesting. It puts into perspective how her feedings are going. So it sounds like with her fluid levels going down she is better able to take her formula. That’s great!
    I hope that today her fever is going away. We will pray that Haven can heal around the dialysis tube so she can continue since it seems to be helping. What a little trooper!
    Take care,
    As always,
    Love & Prayers, Laurie

  2. Mardell Says:

    Hi Haven, Jeremey, & Alison,
    We’re watching closely and
    praying diligently.
    Love & Hugs,
    Grandma Dyke & The Coopers

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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