To those affected by a heart defect:

Defying the laws of medicine…

April 27, 2007 at 9:23 pm by Mom & Dad

Haven had a good day today as she continues to do well on dialysis.  We did notice this morning that her dialysis tube site was leaking.  After testing the contents of the leakage, it was determined that the dialysis fluid was leaking out a little.  This type of leak has major risks for infection, so they reduced the amount of fluid that Haven receives every hour.  

Initially, this seemed to be a bump in the dialysis road because, theoretically, less of Haven’s extra on-board fluid will come off if the amount of dialysis fluid is reduced.  However, on average we have been getting off about the same amount.  So once again, little Haven defies common medical theory and practice.  That’s ok with us.  We will be continuing the current plan through the weekend and hopefully have an even skinnier Haven by Monday.

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. Laurie Says:

    That’s great news that Haven is doing well on the dialysis. Have a nice weekend and we pray all continues to go well. I like the heading for this posting. (smile) She certainly does seem to ‘defy the laws of medicine’ sometimes!
    As always Love & Prayers, Laurie

  2. Michelle Halcomb Says:

    Such a wonderful posting, it is so good to hear the progress she is making!! Still fervently praying for all of you!! 2Corinthians 13:14 “The grace of the Lord Jesus Christ, and the love of God and the fellowship of the Holy Spirit, be with you all.”

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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