To those affected by a heart defect:

Shrinking Haven

April 26, 2007 at 7:53 pm by Mom & Dad

Haven has technically been on dialysis for a little over 24 hours now and is doing very well with it.  The doctors are still trying to optimize the treatment to get the desired results, but the treatment is working so far.  Haven peeked at us several times today–just barely able to open those eyelids for a brief second.  We also restarted her feeds back up today.  The two major things that we wanted to see done for Haven right now was getting rid of the excess fluid and increasing nutrition.  Both of those are happening and we are happy with the progress so far. 

We have a long way to go, and to be honest, we don’t really know where we’re going at this point.  But, we all want to see Haven get better, so we’ll work on the most pressing things.  Hopefully, someday there won’t be anything else to work on!  Thank you all SO much for the comments, the verses, and the emails.  Those things really are very uplifting to us and we praise God for all of you and how instrumental you have been in helping us all get through this.  Along with you all and the grace God has given to us, we thank Him for this: yet another day with our precious Haven Leigh.   

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Laurie Says:

    I’m glad the dialysis is helping and she was able to take a peek at you. She’s probably pretty tired too!
    I want you to know I’m happy for this update, as I was checking one more time before I called it a night.
    Love & prayers, Laurie

  2. The Myers Gang Says:

    We were so happy to hear that the dialysis is working, this is great. Haven getting a peek at you two was as much as a sight for sore eyes for her as it was for you. Continuing to put the prayers up for you three, knowing there is a ways to go. Looking forward to further updates. We love ya!!! 🙂

  3. G.G.Uncle Virgil 'n Aunt Bonnie Says:

    How exciting for you to get a peek at Miss Haven’s beautiful eyes. We know you must be really happy for each little thing that happens like having your daughter peeking at you. You choose a perfect name for her because every day she’s in the “Haven” of the arms of Jesus and His love. You’re all always in our prayers. Thanks again for the updates.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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