As we progressed through Saturday, Haven’s urine output slowly decreased to practically nothing.  This was very concerning for everyone.  There is great concern as to just how much more fluid overload Haven’s body will be able to tolerate with such poor kidney function.  We spoke for a long time with the kidney doctor Saturday evening discussing dialysis and what that would look like for Haven specifically.  There are many many risks involved with that procedure espcially for someone with a major heart defect and liver failure; however, it may be her only opportunity to get past this point.

At that time on Saturday, it was much too late in the evening for something to be done so we decided to wait until morning to press the issue further.  When we came in Sunday morning, we (and everyone else) were surprised to find out that early that morning she had increased her urine output.  In fact, she did such a good job yesterday that by the end of the day she had more out than in for the first time in about a week.  This put everyone’s mind at ease; however, she is not making enough progress to move forward–just enough to not continue retaining large amounts of fluid.  So, talks about dialysis will continue today.  We are also expecting results back from the genetics tests this week as well.  Hopefully, over the next few days we can have some more information with which to make our decisions.