To those affected by a heart defect:

Kidney Results

April 20, 2007 at 8:30 pm by Mom & Dad

Not much new today.  We took another trip back downstairs to have a repeat kidney study.  Actually, it was a continuation of yesterday’s study.  The results of the kidney study say that Haven has severe ATN (Acute Tubular Necrosis).  The easiest way to describe it is that her kidneys are functioning at a very poor level.  We already knew this, of course, but the test does confirm it.  Currently, she is not able to keep up with the amount of fluid she is getting in, and conversations about dialysis have started again.  One thing to keep in mind:  with as much fluid as she has retained through all of this, even if her urine output was continously stellar it could take weeks and weeks before she got rid of enough fluid to bring her back down to “normal”. 

We were supposed to have a meeting with the metabolic/genetics doctor today, but he got tied up so we had to cancel the meeting.  Therefore, we have no new information to report in that arena.  Thanks for checking up on us.   

Posted in Recovery #1 | 3 Comments »

3 Responses

  1. Michelle Halcomb Says:

    Dear Jeremy and Alison,

    It was so good visiting with you yesterday. Thank you for allowing me to be a part of your lives and precious little Haven. She holds a special place in my heart. I leave you with this today….”If you abide in Me, and My words abide in you, you will ask what you desire, and it shall be done for you.” John 15:7

  2. Laurie Says:

    Just want you to know we’re still out here, praying and wanting the best for your family.
    With Monday rolling back around I hope you are able to reschedule the meeting with the metabolic/genetics doctor soon.
    Dialysis may be just the little boost Haven’s kidneys need to help reverse the ATN.
    Our hearts are with you!
    Love, Hugs and Prayers, Laurie

  3. Bethany Halcomb Says:

    I have been praying for Haven at church and school, I wanted to remind you of this verse..”For with God nothing will be impossible.” Luke 1:37

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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