To those affected by a heart defect:

Feeding Started Again

April 2, 2007 at 5:14 pm by Mom & Dad

Haven had a good day today.  She allowed us to take several steps forward on the ventilator weaning process.  Due to her fluid retention, she received some new medications to aid her in shedding some of that fluid.  We also are in the process of scheduling a visit to the cardiac catheterization lab this week.  They plan on sending in a little camera to look around Haven’s vascular system in search of anything they could be missing that might be causing some of these peripheral problems that Haven has been experiencing.  This will be a new experience for all three of us.

Haven also started receiving milk again today through her N-J tube (the one through her nose that goes directly down to her small intesting).  She’s at a small amount, of course, but certainly not as small as she’s ever gotten.  Overall, we’re pleased that this decision was made today.  Not only is it very important that she be fed, but one theory is that making her digestive system work more may actually cause her excessive gas to move through her system a little better.  She’s seems to be tolerating it so far.  Of course, the reason why we haven’t started feeds for the past several weeks is for fear of it causing more chest drainage.  Well we haven’t had chest tubes for one week now and the x-rays have all looked good.  We’ll all be watching the x-rays closely the next few days to see if these feedings are causing fluid to build up in the chest cavity.  Otherwise, she seems to be tolerating the milk so far.  Thanks for checking up on Haven.  She (and we) certainly appreciate your interest in her special little life. 

Posted in Recovery #1 | 6 Comments »

6 Responses

  1. Gr.Grandma M Says:

    Keep up the good work sweetie. I am thinking of all three of you. I am still keeping you all in my prayers. Love, Grandma M.

  2. Aunt SallyTT Says:

    Just wanted to let you know youare always in my thoughts and prayers. I’m here in Missouri visiting Lisa on my vacation. I’m glad to hear positive things! Keep the faith. Love You!

  3. Randy and Lori Says:

    Just wanted to let you know that we look in on you daily, many days more than once. Thank you for being so diligent at your postings. I am always amazed at the encouragement that you give us as readers.

    You are in our prayers. Love you lots.

    Randy and Lori

  4. Uncle Justin Says:

    Milk. It does a body good!
    Keep it up Haven!

  5. Abby Tumbleson Says:

    Wonderful, just wonderful. Haven you are doing great. I pray that everthing keeps going as well as it is right now. Everytime I check the site I read that you are improving. Keep it up. Have a blessed day.

  6. Sharon Dyck (Carissa's mom) Says:

    Thank you so much for the time line feature. My Bible Study has been praying for Haven, but does not really understand. So for tonights Bible study I printed up the timeline along with 2 pictures of Haven so they understand better and get the see the picture of your beautiful daughter. Haven has prayers coming from Illinois!
    Wishing you all an Easter that brings you peace and comfort.
    Hallelujah…He is risen indeed!!!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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