To those affected by a heart defect:

Restful Sunday

April 1, 2007 at 7:32 pm by Mom & Dad

Haven had a good day today.  Her numbers were fine all day, but we didn’t make any changes to the ventilator settings.  We’re hoping to resume progress there tomorrow.  She is still retaining lots of fluid and is quite puffy again.  Her abdominal area is still very distended, but it doesn’t appear to be giving her any more breathing problems.  The only real excitement today was that her G-tube almost fell out of her stomach again.  Since she is so distended the site where the tube enters her stomach is being stretched and getting larger than what it should be.  Therefore, since the hole is bigger the tube was just kind of laying there.  They said we wouldn’t be able to do a whole lot with that but getting rid of the extra fluid in the tissues (which we have been trying to do anyway).  As always, thanks for your support and encouragement.  It’s been a long road, but Haven is determined to fight through it.   

Posted in Recovery #1 | 1 Comment »

One Response

  1. The Myers Gang Says:

    GOD BLESS YOU LITTLE HAVEN and you too Mom and Dad. We Love you all and are still lifting you up in our thoughts and prayers.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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