To those affected by a heart defect:

Holding Haven

March 20, 2007 at 9:05 am by Mom & Dad

Yesterday was a great day for us because we were able to hold Haven for the first time in about six weeks.  In fact, we were so excited about it that we forgot to put a post here on the site!  Some of our nurses and doctors were suggesting that if it were possible to get Haven and all her gear together, it would be a beneficial thing (for Haven AND mom & dad) to be able to hold her.  As you can imagine, it’s quite an ordeal to get her in a position to get out of the crib with all those tubes and wires (I think we counted 17), but our nurse was very willing to accomodate.  It was so nice to hold her again.  We were able to hold her for about two hours yesterday.

There seems to have been a little confusion between doctors from the decisions made this weekend regarding her chest drainage.  So, we’re still trying to get that all resolved.  Chest drainage is otherwise holding somewhat steady from Sunday.  They made some adjustments to her medications and nutrition so that she is not getting as much fluid intake.  Hopefully, this will assist in her becoming less puffy.  As always, thanks for keeping up with Haven’s story.  We added a new page to the site.  A tab can be found at the top of the page called “TIMELINE”.  This just gives the highlights of the Haven’s adventures and is an easy way to see all that she’s been through in the first 15 weeks of her life. 

Posted in Recovery #1 | 5 Comments »

5 Responses

  1. Natalie Says:

    You guys that is so exciting! I’m so happy for all of you, and I love you all very much!

  2. Jenn Says:

    I love the timeline. Her chest seems to be quite the mystery. She’s definitely giving the doctors a challenge, but hopefully it gets solved soon!

  3. Sally Says:

    I’m so glad to hear you got to hold Haven! I’m sure she enjoyed it as much as you did! Give her a kiss from her Great Aunt Sally.Always in my thoughts and prayers. Love you all, Aunt Sally

  4. The Myers Gang Says:

    FANTASTIC!! I am as well, so happy for all of you. I Hope too that it is just the begining of all the holding for you all. I’m sure the feeling for you and Little Haven was good healing in a lot of ways,not to mention a little fun in the spoiling department, LOL!! I too would like to comment on the timeline added to the page. It is awesome to look back and review all The Adventures of Haven. She is a blessing to all that have been following her story and her parents are a wonderful inspiration to all as well. We Love you guys so much.:)

  5. Ann Says:

    Your timeline is awesome! You certainly made report easier for us!! Post it in her room.(hint) You may end up on “Medical Mysteries” yet, and you guys may be the ones to figure it out!! Good job! Way to be the great parents that you are, and staying on top of things! Haven loves you for it!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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