Only the good stuff…
Yesterday afternoon, in light of some new light shed on a possible connection between Haven’s feedings and her chest drainage, they decided to switch her feedings from mom’s milk to a different formula that might be easier for Haven to digest. Well, after a few hours of the new formula, Haven got very uncomfortable. She struggled a good deal trying to tolerate the formula. She’s such a trooper, but the formula just became more than she could handle. So we stopped feeding her with that. It appears that Haven likes to eat only the good stuff. Â
Since, her being fed milk seems to correlate with higher chest drainage, and she can’t seem to stand anything other than milk, we have opted to stop all feeding until we have a clearer picture. She will continue to get the nutrition she needs through her IV. Obviously, we want Haven to eat, but getting the chest tubes to stop is higher on the priority list at the moment. Tomorrow, we should have a better clue about how all of this affects her drainage. We’ll keep you updated!
Posted in Recovery #1 | 3 Comments »
March 16th, 2007 at 6:33 am
You know Haven, I just knew you would have good taste. 🙂 Everyday I amazed with what a strong girl you are! I thank God for your strength and I pray that it continues. I pray for your parents’ strength as well.
I hope that the weekend is a smooth one for all three of you. Get some rest!!
March 16th, 2007 at 2:55 pm
Sorry it has been so long. We were disconnected from technology while we were on vacation. Even though we were not able to read about Haven for a few days, we sure kept her in our prayers.
I think you should get a rebate on Haven’s bill with all the graphs and research that you do for Haven. You two may get offered a residency.
We love you and pray with you for the day that you can leave Riley and take Haven on walks.
March 17th, 2007 at 3:36 pm
Dear Allyson and Jeremy,
Just wanted you to know that both of you and Haven are in my prayers. I think of you guys so much. What an inspiration you are to me. Lillian is doing well. We have made several trips to Riley for follow up. She’s also a trooper. They are going to be looking at her heart again in a couple of months. Once again, my thoughts and mostly my prayers remain with you and your sweet daughter.