To those affected by a heart defect:

Update

March 13, 2007 at 11:48 am by Mom & Dad

We sincerely apologize for not being able to post any updates for the past couple of days.  It appears that the technical difficulties have been resolved.

Haven had a good rest of the weekend.  She continued to sleep quite a bit, but she was awake now and again and was very alert.  Monday afternoon they were able to take her back to the operating room for the procedure on the right side of her chest.  Again, they looked around inside just to see if they could find one specific source of the chest fluid.  They could not, so they proceded with the pleurodesis.  Her surgeon told us afterward that she is a trooper and did very well during the procedure.  Haven made it back to her room around 6:30pm.  Since she has been on so much medication she has developed somewhat of a tolerance to some of it.  This means that some of the pain medications they give her aren’t as effective as they normally would be.  So, we spent several hours late last night trying to get her pain management under control.  She is as comfortable as she can be right now, but obviously very sleepy due to the amount of medication she is on.

It will be a day or two yet, before we have some solid evidence of the results of the procedure.  But as of now it appears that her right side drainage has slowed down.  The left side is still up quite a bit:  not nearly as much as it had been several weeks ago, but still too much for her body to handle on its own.  Hopefully, it will slow down over the next couple of days. 

Yesterday was Haven’s three-month birthday.  It’s hard to believe that we’ve been down here for 13 weeks now.  Haven is being as strong as her body will allow and we look forward to the day when we can take her home.  Thank you for checking up on us.  It means so much to know you are there with support, encouragement, prayers, and love.   

Posted in Recovery #1 | 4 Comments »

4 Responses

  1. G.G. Uncle Virgil 'n Aunt Bonnie Says:

    You sure don’t need to apologize for not getting an update out. You have been so good at getting the info out and we know most of the time you want to be by Haven. Thank you for thinking of others. Kiss Miss Haven for her 3 month birthday for us. Sending Love ‘n Always Prayers

  2. Sierra Says:

    I am glad that the surgery went well. I feel like I am constantly sounding like a broken record…but…I am praying for all three of you. I hope all is going well and I will be looking for more updates.

  3. Uncle Justin Says:

    Not a broken record Sierra, a sweet savour of Christ! (2 Cor 2) This world stinks, we need some more of that sweetness!

    In Philipians Paul said that when we stand fast in the Lord (4:1), are of the same mind in Christ (4:2), help one another (4:3), rejoice in the Lord in every way (4:4), and are careful for nothing in the Lord (4:5), then we shall have the peace of God that passes understanding (4:6).

    We are all with you in obedience to the simple request that is just as relevant in the mouths of J&A as it was in our Apostle Paul.

    “Brethren, pray for us.” – 1 Thess 5:25

    We love you guys!

  4. Anonymous Says:

    Hi, We are so glad Haven did so well during her surgery. We were glad to hear you were able to go outside and get some fresh air. God is so good in providing us with what we need. We send our thoughts and prayers for Haven to continue to get better. Our love,Don and Linda Nobles

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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