To those affected by a heart defect:

The Yellow-robed People

March 7, 2007 at 10:28 am by Mom & Dad

 Haven’s white blood cell count was still very high again this morning, so the doctors still do not feel comfortable taking her back to the operating room.  However, since fluid is continuing to accumulate on the right side of her chest, they have decided to put in another chest tube until the surgery can be performed.  It is important that they remove the backed-up fluid because if enough fluid builds up on the rigth side, some of it could be forced back over to her left side which could actually reverse the pleurodesis procedure she had last week. 

While she is under anesthetic for the chest tube procedure (which will be done in her room), they plan on cardioverting her again in order to bring her heart out of the atrial flutter that it is stuck in.  You may recall that she has had a cardioversion before (the electric zap).  Haven continues to have tests done so they can try to figure out why her body seems to always be trying to fight an infection that isn’t very easy to find.  We are thankful that the tests are being done, but unfortunately some of those tests require that Haven’s room be under “strict isolation”.  That means that the doors have to remain shut and everyone who enters must wear protective robes, gloves, and masks.  If those tests come back negative, then she will be taken out of isolation, but it usually takes at least 24 hours to get the results.  So until then, Haven will be trying to figure out who all the yellow-robed people are and why some of them sound like mom and dad. 

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. The Myers Gang Says:

    Hi Guys! We are still praying for positive test results and healing strength for you Little Haven, and continued power strength for you too, mom and dad.We love you all soooo much.

  2. Anonymous Says:

    Alison,
    I think and pray for Haven, you and your husband a lot. You are one strong family. My love to you all. Carolyn Gilbert
    P.S. I still miss you at the library.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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