To those affected by a heart defect:

12 Weeks Old Today

March 6, 2007 at 3:17 pm by Mom & Dad

Haven has been sleeping and resting all day today. Her white blood cell count is still high today, so the surgery will be postponed and then reevaluated on a daily basis. When they feel that she is stable enough to go into the operating room, then they will attempt the pleurodesis on the right side of her chest. We also replaced an N-J tube into a nostril for feedings and medications to go past the stomach. Otherwise, everything else is the same. Though we know another surgical procedure is a big deal for this little one, we also realize how important it is in order for her to move forward and recover, so we hope that she will feel better soon and be able to have the procedure done.

Posted in Recovery #1 | 1 Comment »

One Response

  1. Sierra Says:

    Hey Johnson family! I’m glad it was a relatively good day. I feel like I keep posting the same message over and over. But, I want to tell you that I am praying for all three of you! All of you keep up the good work.

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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