To those affected by a heart defect:

10 Weeks Old Today

February 20, 2007 at 11:22 pm by Mom & Dad

Yesterday evening, Haven took a trip downstairs to the Radiology Dept to have a new IV line put in to direct medications up her arm and to her heart. She had one of these lines previously, but it was getting old and possibly infected. She did really well on her trip there and back.

Today she slept a little and played a little and was overall pretty healthy. We are still waiting to see if the new medication will dry up her chest drainage. They will give the medicine another six days to work before they decide to try to correct the problem surgically. Another trip to the operating room would be a huge strain on Haven so we are really hoping the medicine will do the trick. Besides some painful incidences with a neck rash and a sore bottom, Haven seems to be comfortable and very alert. She loves to stare at her animals hanging abover her bed and study the pictures in her black and white book. Hopefully she will sleep tonight while mommy and daddy are gone and be ready for another big day tomorrow.

Posted in Recovery #1 | 1 Comment »

One Response

  1. Rob , Becky and Tara Says:

    We were so glad to hear that Haven has had a good day (relatively speaking!). It brought a smile to our faces!! Hope you are all staying well and keeping the faith. We are!!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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