To those affected by a heart defect:

Night and Day

February 19, 2007 at 1:28 pm by Mom & Dad

Haven slept for nearly 12 hours straight yesterday.  Her nurse told us that she was up all night Saturday.  When we arrived at her room this morning, she was asleep.  The nurse informed us that she was awake all night.  So, apparently she has her days and nights flipped flopped (they say that’s pretty common around here). 

We are still in the waiting stage for our newest plan.  Chest tube drainage dropped several days ago, but has remained steady at its current level ever since.  Hopefully, we’ll see another drop in the next couple of days.  Haven will be going down this afternoon to have a new line put in for her medications.  The one she has is getting too old and is not working too well for getting things she needs in her.  Guess you could say you’ve been in the hospital too long if they start replacing things because they’re too old.  Haven is still working with physical and occupational therapists to keep her limbs from becoming too stiff.  We’re working on getting a contraption set up for Haven to be to sit up so she doesn’t have to be on her back all of the time.  She’ll love that! 

Posted in Recovery #1 | 2 Comments »

2 Responses

  1. Sierra Says:

    Hey there baby girl! I hope this is a great morning for you. I prayed for you all the way to work this morning. God has wonderful things instore for you Haven! It is going to be exciting to watch you grow. God has done so much already and I thank Him for that, but there is a lot more where that came from. With God nothing is impossible! I know there will be times when you will get discouraged and you will get tired. In those times, remember God loves and is holding your hand. He has a mighty work for you to do. Until he does…”bloom where you are planted”.

    Praying that today is a wonderful day for you Haven!

  2. Anni Says:

    Hey guys! It was really encouraging talking with you yesterday. You are both so strong and your faith in God shows strongly through your actions and attitudes. Keep your heads up and know that God is in control. I’m so glad I had the opportunity to take care of Haven and to see you both again. Take care of her for me!

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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.

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