December 14, 2006 at 6:02 pm by Mom & Dad
Haven had a great night last night. The nurses found out that she just loves to sleep curled up on her tummy. Alison was discharged from University Hospital this afternoon and is slowly regaining strength. We met with a lot of doctors on Haven’s “team” today. She will be taken to the operating room tomorrow morning at 7:00am. When it’s all said and done, we should be able to see her again around 6:00 or 7:00pm tomorrow evening. She will now be in the Pediatric Intensive Care Unit (PICU) on the second floor of Riley to be more closely monitored (she has a nurse assigned specifically to her 24 hours a day). She can be there anywhere from 1 week to 3 or 4 weeks to recover before going to a less intensive unit. I know some have been asking about an address for us down here. If you would like to drop us a note via mail, please send it to:
Jeremey & Alison Johnson, Room 15
c/o Ronald McDonald House
435 Limestone Street
Indianapolis, INÂ 46202
We’ll try to keep you updated as we receive updates throughout the day tomorrow.
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December 13, 2006 at 10:30 am by Uncle Justin
Some of you have asked about getting phone numbers or addresses to reach Mom and Dad at the hospital. Unfortunately we can’t post much information on the blog since it is still a public website that anyone can view.
However, there are ways to find out information if you are determined enough… 😉
Right now Haven is at Riley and Alison is still recooperating at IU Med Center. Mom and Dad do not know the exact room they will stay in, but housing is available.
Firstly, you can post what you want to say on the blog. This is one of the quickest forms of communication. When Mom and Dad do get on the internet they check the blog first. Also, people close to them are checking the blog multiple times a day and relay messages as often as they can.
Secondly, there is the ‘Contact’ link at the top of the blog or on the right sidebar. On the ‘Contact’ page Mom and Dad have setup a special email address for HavensHeart.net. You can email them any private messages. However, as of right now they have very limited access to the internet and so may not be able to respond quickly to your inquiry.
Thirdly, If you would like to speak to one of our operators about shipping arrangements, you should contact a grandparent. Grandpa Johnson, Grandpa Kevin, or Grandma Joy will be able to physically reach them with any mailed items or personal messages and communicate to you about other options.
With all this said, Jeremey and Alison wanted to relay that they wish they had time to sit and talk to each one of you individually about the situation, but regretfully it is not possible. especially for the time they are spending with Haven.
Jer should be on the internet this afternoon to make another post.
Thanks for all your interest and concern!
Uncle Justin
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This site contains the story of Haven Leigh and serves as a source of hope and encouragement to anyone who has or knows a child born with HLHS, a congenital heart defect, or other terminal illness. Here, we show the rewards of nurturing and supporting a special child while celebrating her memory by sharing her story with others.